Saturday, January 21, 2012

Wheelchair

          FINALLY SOME TRULY GOOD NEWS TO SHARE!!  Harlow recieved her new Convaid Cuddlebug Stroller (Her first Baby Wheelchair!!!).  And so far (3 or so days) we really like it! It gives Harlow the support she needs to be able to sit fully upright so she can actually look down at her hands and toys. It fills my heart with joy to see her face light up with excitment as she focuses in on things placed on her tray, unlike before when she couldnt actually see them because she had to exert so much of her strength and energy just to hold her head up that she didn't have enough energy left to try and proccess any thing visually (Its been explained to us that its kinda like patting your head, rubbing your tummy, while your hop on one foot). The only thing that is kinda a big problem is the fact that we cannot fit the darn wheelchair into our trunk.

          We also ordered Harlow the Squiggles Early Intervention Activity System from http://www.adaptivemall.com  we were told that we will be recieving it no later than Friday Jan. 27th!!!! Our heath insurance doesnt cover this piece of equipment and we would never have been able to afford it on our own, but due to the wonderful article written in the Sacramento Bee about our family and the AMAZING people (we think of all of you as Harlows Angels) who chose to donate to our little princess we were able to purchase the Activity System without any out of pocket expenses!!!!!!

          Our goal is to raise enough money (With fundraisers, donations, and selling my crafts which I am going to be opening up a shop on etsy.com soom) to help fund particular pieces of equipment for Harlow that  our health insurance has deemed either unnessicary or a "luxury type item" that our policy will not cover. We have tricare prime retiree health insurance and due to federal budget cuts, tricare was forced to reduce and cut most of their quality of life programs... I mean seriously out of all things they could have chosen to cut....
Makes me so mad......
Oh well what can you do..... I have to go mix up Harlows meds so to all of you, have a wonderful night!!!

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